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News (Blog)

  • 19-Apr-09 08:27 | anonymous member

    When Broken Embraces, the latest film starring Penélope Cruz is released, it is likely to attract very close interest from Daniel Day-Lewis.

    Its director, Pedro Almodóvar, has disclosed that the plot was inspired by the revelation that Day-Lewis's late father-in-law, Arthur Miller, had hidden for decades the existence of a son, Daniel, who suffered from Down's syndrome.

    "I think the story of Arthur Miller's son is terrible," says the Oscar-winning Spanish director.

    The American playwright had Daniel committed to an institution when he was a week old and excluded him from his life until Day-Lewis reportedly persuaded Miller to meet him just weeks before his death.

    Miller amended his will to leave Daniel an equal share of his estate. "I use the story to speak of those monstrous fathers who overwhelm their children," adds Almodóvar.

    It will be the third time that Miss Cruz, a former girlfriend of Tom Cruise, has appeared in a film directed by Almodóvar, after Volver and Todo Sobre Mi Madre.

    Earlier this year, she won an Oscar for Best Supporting Actress in the Woody Allen film Vicky Cristina Barcelona. She is the first Spanish woman to have won an Academy Award.

  • 14-Jan-09 10:08 | anonymous member
    news@TimesRecord.Com
    01/13/2009
    By Beth Brogan, Times Record Staff

    BRUNSWICK — Jenny Labbe works out at Full Spectrum Fitness on Cumberland Street every Wednesday and Friday afternoon, usually beginning with a cardio warm-up, some stretching and then a three-stop circuit of free weights, boxing and jumping rope. Sometimes she and Chad Murillo, the facility's owner, toss a medicine ball or race each other up the stairs. They frequently end their session with a bit of good-natured wrestling.

    Click to view a photo slideshow of this articleHow Jenny Labbe turned herself into 'Skinny Mini' — Personal trainer Chad Murillo spots Jenny Labbe as she works out at his business, Full Spectrum Fitness, in Brunswick.

    Troy R. Bennett / The Times Record





    VIEW photo slideshow.
    She looks forward to the workouts with Murillo, who she said "helps me a lot." She added in a loud whisper, "Plus, he's cute."

    Labbe, 32, is a client of the Independence Association, a Brunswick-based organization that assists individuals with developmental disabilities such as autism, cerebral palsy and mental illness.

    She also is one of several young women Murillo has worked with during the past few years in a program he designed for clients of the Independence Association. Since she's been working with Murillo, Jenny has lost about 40 pounds— in addition to more than 60 that she'd lost previously. Her dad, she said, now calls her "Skinny Mini ... because I am."

    But funding for the program — Murillo offers a reduced rate of $38 per hour and then donates half— has dried up, causing at least one participant to curtail her regular visits to the gym.

    Murillo hopes another benefactor is lurking, willing to help others feel as good about themselves as Labbe clearly does.

    The women in the program all have Down Syndrome, which Murillo said can make food addiction more complicated. Some of the complications of the condition make food addiction even more dangerous, according to Murillo, who offers nutrition guidance as well as fitness training.

    "People with limitations like that have a tendency to have food problems because it's one of the few things they can enjoy," he said. "They don't necessarily always have the freedom everybody else does. It's very easy for them, in my opinion, to develop a bad relationship with food."

    Statistics show as many as 95 percent of people with Down Syndrome have early Alzheimer's disease by the age of 50, and many also suffer from thyroid problems and a constant struggle to maintain their weight.

    Kimberly DeVries, another of Murillo's clients, also underwent a dramatic transformation while working with the trainer at Full Spectrum Fitness. When he met her, Murillo said DeVries was not very social and wouldn't make eye contact with other members. At 4 feet, 6 inches and 213 pounds, her body mass index was "sky high." DeVries also had sleep problems and difficulty with her attention span and confidence.

    But thanks in part to her twice-weekly workouts with Murillo, DeVries lost 70 pounds, a transformation she had maintained as of December.

    However, this month she won't be exercising with Murillo: The donor who had contributed her $40 weekly fee was unable to continue the funding, Murillo said. He hopes to find a new benefactor for DeVries.

    Murillo said he worries that DeVries' progress will be jeopardized if she can't continue working with him.

    "I wouldn't want to see her lose that," he said. "My fear is that if that part of her lifestyle falls apart, then so will her health. I'd hate to see her lose everything she's worked so hard for."

    For more information on the program or to sponsor a client, call Full Spectrum Fitness at (207) 721-0007.
  • 31-Dec-08 07:13 | anonymous member

    It’s official: Holbrook is oldest living man with Down syndrome

    County News/Ruth Ann Hager

    Junior Holbrook looks at his official certification from the Guinness Book of World Records that indicates that he is the world’s oldest living man with Down syndrome. Assisting are Pat Foley, right, and Melissa Stoltz.

    By RUTH ANN HAGER
    News Editor

    WASECA — Pat Foley was so excited when the official Guinness World Record arrived for Bert Holbrook a week ago that she wanted to stand on a street corner and shout out the news.

    “It’s so cool,” Foley said.

    Holbrook now has the certificate to prove he holds the Guinness World Record as the oldest living person with Down syndrome — in the world.

    Eighteen months ago, Foley began the process on Holbrook’s behalf after learning that the oldest man with Down syndrome, according to Guinness, had died in 2007. She began to think that her patient at Elm North in Waseca, could hold the record.

    Holbrook turned 80 years old in August.

    On Tuesday, Foley and Melissa Stoltz, who also cares for Holbrook at Elm North, showed him the certificate and read him a letter from the Records Management Team at Guinness World Records in London.

    The letter reads, “We are pleased to confirm that you have set the new Guinness World Record for ‘Oldest man with Down’s syndrome - living’ and a certificate to commemorate has been sent to you by post today.

    “Details of your achievement have been entered into our records as follows: Bert Holbrook (USA, b. 24 August 1928) is currently the oldest fully authenticated male with Down’s syndrome aged 80 years 79 days as of 11 November 2008.”


    “In the world!” Foley repeated to Holbrook, who smiled at the document held in front of him.

    He was born in Waseca to Bert and Lillian Holbrook in a time when people with Down syndrome lived to an average age of nine years, institutions were the norm and medical care was minimal, according to experts.

    But Holbrook thrived in the Waseca community where he lived with his parents and older sister, Marian, and helped out in the family grocery store. For 60 years he was a familiar face around town and everyone knew him as Junior.

    Holbrook went to live at Elm Homes in 1984 and moved to Elm North in 2004.

    Elm Homes owner Gene Miller plans to frame the Guinness World Record certificate for Holbrook’s room, Foley said.

    Holbrook’s 90-year-old sister in Indiana is very excited about the record for her brother and Foley is happy for the publicity the Guinness World Record has brought to Holbrook and others.

    “I want everyone to know how awesome this population is,” she said about the Down syndrome community.

    “They’re real people, not statistics.”

  • 23-Nov-08 06:55 | anonymous member

     

    From ABC Newspapers in Minnesota:

    Sam Hagman (pictured) wanted to work with kids and nothing would hold her back, especially not Down syndrome.

    Down syndrome can lead to a combination of major and minor differences in structure and impacts cognitive ability. The presence of all or part of an extra chromosome causes the disorder.

    Hagman, 26, has lived her whole life with the disorder, but has gotten by quite well.After living most of her life with her parents Maggie and Matt Hagman in Ham Lake, she moved into a Blaine apartment with her roommate Jorja. Hagman calls four days in advance to arrange her own transportation with the Anoka County Traveler bus service.

    For over the past six months, Hagman has worked with young children ages six weeks old to 10 years old in a child care program at the Andover YMCA.

    Maggie Hagman said they raised Sam no differently than their son Luke, who is now 24 years old and lives in Duluth. They wanted to raise their daughter to become an independent person.

    “She’s kind of her own ambassador,” Maggie Hagman said.Hagman’s cognitive skills were always on the higher end of the spectrum, her mother said.

    When she was in school, Hagman spent about half the time in a special education setting and the other half of the school day in regular classes with her peers.

    Hagman graduated from Forest Lake High School in 2001 and after one year in a transitional program in White Bear Lake, management at the Forest Lake Wal-Mart hired her.

    “She wanted to work and give back to the community,” said Deborah Trenholm, of Life by Design.The Fridley-based Life by Design employs approximately 200 people who support people with disabilities in their homes or at their jobs.

    Trenholm coordinates the supported employment services program, which currently helps around 30 people with disabilities.Life by Design assists them in the job search process and will stay in touch with the employer to make sure things are running smoothly. The clients of Life by Design fill out the job applications and go through the interview process like any other candidate, Trenholm said.

    After eight years of working at Wal-Mart — three years in Forest Lake and five years in the Blaine Wal-Mart — the job no longer satisfied Hagman, so she worked with Life by Design to search for another job.

    When Hagman heard about a child care position in the Andover YMCA Kids Stuff program, she was intrigued.“I love kids. I like the ‘Y’,” Hagman said.

    Kids Stuff offers child care services to YMCA members from 8 a.m. to 8 p.m. Monday through Friday, from 8 a.m. to 4 p.m. on Saturday and from 9 a.m. to 7 p.m. on Sunday.

    Hagman is one of 35 YMCA employees, most of them part-time, who spends time with children. She works from 9 a.m. to noon Monday through Friday feeding the young children with bottles or playing or reading with them.

    It has been a good experience for the YMCA, said Kristen Perez, senior Kids Stuff coordinator. A lot of parents and employees have been drawn to her upbeat personality, Perez said.

    Hagman does not start work until 9 a.m., but she arrives at the YMCA even before the sun rises over the horizon.

    The Anoka County Traveler picks her up each weekday around 6 a.m. at her Blaine apartment and a half-an-hour later she arrives at the Andover YMCA. Hagman will swim in the YMCA pool and work out before she cleans up and goes to work.

    After she is done with work at noon, Hagman will head home to eat lunch and relax before a Life by Design employee stops by her apartment.

    Trenholm said Hagman meets with a Life by Design staff member for a total of approximately 20 hours each week to help with errands although Hagman will make a trip to a nearby gas station if she needs to pick something up.

    “She plans her schedule,” Trenholm said. “Her calendar is very booked from her social activities, to grocery shopping or if she needs to run to the bank.”

    Hagman does not always slow down during the evening. When chores are done, her social life awaits.On Monday nights, Hagman goes to a coffee bar and dance club in Coon Rapids called Sober City to dance with her boyfriend Jeremy. They once won a dance-off contest.

    Hagman is also in a skilled bowler. She took third place in a tournament at Andover Lanes. She also loves to shop, talk on the phone and hang out with friends.Perez said every time Hagman comes to work, she has an interesting story to tell.“She has more of a social life than I do,” Perez said.
  • 09-Nov-08 07:59 | anonymous member

    Videos and stories documenting the crisis needed NOW.

    January 6, 2009 hour-long news special to focus on the emerging crisis for people with intellectual disabilities and their families.

    Visibly moved by comments from self-advocates, family members and chapter leaders at the Opening Plenary Session of The Arc's 2008 National Convention, renowned television journalist, Geraldo Rivera, electrified the audience, pledging that on January 6, 2009 - the anniversary of his expose about Willowbrook - he will present a one-hour news special to shine light on the current crisis facing people with disabilities and their families - the Waiting List.
    This news expose will only be possible if chapters of The Arc, self-advocates and family members come forward IMMEDIATELY with VIDEO and STORIES that dramatically illustrate the challenge people with intellectual disabilities face today in accessing the service they need to live freely in the community.
    The Arc of the United States will be working with Geraldo and his staff to gather the background information, stories, video and other media to make this show a success..... but time is very short.
    Have good video to share?  Send it in today. 
    Have a compelling story to tell?  Then get to work today.  Write it down or, better yet, take out your video camera and film away!
    Geraldo needs stories about the crisis people with disabilities and their families are facing at all stages of the life span.
    Send your video or stories to communications@ thearc.org .   For assistance contact Laura Hart, Director of Communications at hart@thearc. org or Stacy Monoghan, Online Advocacy Manager, at monoghan@thearc. org
    Let's make this the beginning of the end of the Waiting List.
    Peter
  • 04-Nov-08 08:28 | anonymous member

    Posted by Donna J. Miller/Plain Dealer Reporter November 03, 2008 22:45PM

    Categories: Animals
    Rachel Parker found a job she loves at Constant Companions Doggie Daycare, where she walks Bentley and other canine clients six times a day. She received animal caregiver training through a Hattie Larlham program for people with disabilities.
    Rachel Parker, who has Down syndrome, is one of 21 employees with disabilities at Constant Companions Doggie Daycare in Green, just south of Akron. The 27-year-old woman used to work in stockrooms at retail stores. That was fine, she said, but not as fulfilling an occupation as caring for about 10 dogs a day at the day care, which she helped to open 17 months ago.

    Parker says "it's the right thing to do," walking each dog six times a day, cleaning up after them, playing with them and falling in love.

    Parker is missing her first days of work this month, for good reason. She's traveling to Portugal to swim in the Down Syndrome International Swimming Organization World Championships. No dog-paddling; she learned to swim 12 years ago and excels at the breast stroke.

    The nonprofit group Hattie Larlham partially pays for the doggie day care and trains people with disabilities to work with cats, rabbits, birds, guinea pigs and fish in Uniontown and in Cincinnati. Contact Hattie Larlham at hattielarlham.org, or 330-899-9067.

  • 01-Nov-08 18:18 | anonymous member

    By TANALEE SMITH

    SYDNEY, Australia (AP) — A German doctor hoping to gain permanent residency in Australia said Friday he will fight an immigration department decision denying his application because his son has Down syndrome. Bernhard Moeller came to Australia with his family two years ago to help fill a doctor shortage in a rural area of Victoria state.

    His temporary work visa is valid until 2010, but his application for permanent residency was rejected this week. The immigration department said Moeller's 13-year-old son, Lukas, "did not meet the health requirement."

    "A medical officer of the Commonwealth assessed that his son's existing medical condition was likely to result in a significant and ongoing cost to the Australian community," a departmental spokesman said in a statement issued Thursday by the Department of Immigration and Citizenship.

    "This is not discrimination. A disability in itself is not grounds for failing the health requirement — it is a question of the cost implications to the community," the statement said.

    Moeller said he would appeal the decision.

    "We like to live here, we have settled in well, we are welcomed by the community here and we don't want to give up just because the federal government doesn't welcome my son," he told reporters.

    Moeller has powerful supporters. Victorian Premier John Brumby has pledged to support the family's appeal, and federal Health Minister Nicola Roxon said Friday she would speak to the immigration minister about the case.

    Roxon said the case must go through proper channels — an appeal to the Migration Review Tribunal and then the immigration minister — but that "there is a valid reason for this doctor and his family to be eligible to stay here in Australia."

    "As a government, we understand the importance of having doctors working in our rural and regional communities and we support them in many ways and continue to do this," Roxon said.

    Don McRae, director of clinical services at Wimmera Health Care Group, said the hospital had invested a lot of time and energy in recruiting the German specialist to Horsham, about 100 miles northwest of Melbourne.

    "We were very surprised by the decision," he said of the immigration department's rejection. "It's distressing for Dr. Moeller's family and distressing for the community who have welcomed him and relied on his medical services."

    Immigration Minister Chris Evans has no power to intervene in the case until the review tribunal or a court upholds the department's decision.

    David Tolleson, executive director of the Atlanta-based National Down Syndrome Congress, said he was disappointed by the decision.

    "What is the cost implication to the community of a doctor shortage?" Tolleson asked. "I assume the son had the same costs for the last two years and they were happy to have the family and use the dad as a doctor."

    Down syndrome, caused by an extra chromosome, is characterized by mental retardation of varying degrees. Those with Down syndrome also can have other problems: Nearly half will have a heart defect, some serious enough to require surgery soon after birth.

    Tolleson said that people with Down syndrome have a spectrum of abilities.

    "Some need more support, some go on to graduate from college with a four-year degree, and most are somewhere in between," he said.

    The immigration department said it appreciates Moeller's contribution to the community but said it must follow the relevant laws in considering residency applications.

    "If we did not have a health requirement, the costs to the community and health system would not be sustainable," the statement said.

    More than 150,000 migrants settled in Australia in 2007-08, the department said.

    Shortages of medical practitioners in rural parts of Australia have led a number of recent government initiatives to boost the numbers of doctors and nurses nationwide.

    Associated Press Writer Carley Petesch in New York contributed to this report.

  • 19-Oct-08 17:07 | anonymous member
    LIBERTYVILE, Ill., Oct. 18 (UPI) -- Anne Jennings, who has Down Syndrome, says she's still glowing after being named homecoming queen at Libertyville High School in Illinois.

    Jennings, 17, was chosen Oct. 3 from among 17 girls at her high school and since has been named "Person of the Week" on ABC's World News, the Chicago Tribune reported.

    "Before, I was just plain me," said Jennings. "When I was queen, it changed. It's amazing. Everyone loves me. I love me."

    Her mother, Ellen Jennings, recorded the moment on a video that shows students cheering wildly when the crown is placed on her daughter's head.

    "Amazing. Unbelievable. You teach kids to do the right thing and treat people all like individuals, and look what happens," said Ellen Jennings, crediting her daughter's popularity and ability to make friends to the years she spent in regular education classrooms.

    Jennings says she no longer struggles with questions about why she was born different from others.

    "Now I know why," she said. "This was going to happen."

    © 2008 United Press International, Inc. All Rights Reserved.
  • 18-Oct-08 10:02 | anonymous member

    Last Saturday Victoria Alba walked in to Abraham Lincoln high-school's prom just like any other high school student.

    She walked out the homecoming queen.

    As a 17-year-old girl, that's remarkable because Victoria has Down Syndrome.

    Victoria Alba said, "I am excited to be the queen and I'm just honored to be a homecoming queen and be on homecoming court.

    And though the moment Victoria was crowned was special, Victoria says there was one moment in particular she'll never forget.

    Victoria Alba said, "I love to dance with a cute boy." Victoria Alba got to dance with her homecoming king, Tyler Johnson.

    Victoria Alba said, " His nickname is Blueberry. He is kind of cute and hot."

    Seniors nominated Victoria and five other girls. The majority of her fourteen-hundred classmates chose her as the girl who would wear the crown.

    For this 17-year-old girl it was a night she won't soon forget. And while Victoria has plenty of pictures and video of her big night, it's the memories she can't stop thinking about that she'll have with her forever.

    The other girls on the homecoming court actually lobbied the other students to vote for Victoria

  • 18-Oct-08 09:58 | anonymous member

     by Chris Minor

    Rock Island, IL --History was made at Rock Island High School's homecoming coronation when senior John Garlock, born with Down syndrome 18 years ago, was crowned homecoming king.

    ''They (the kids) were screaming, John, John. I was loving it'', said John.

    He won the most votes from the 1,555 member student body and the crowd went wild.

    John's been in the public school system in Rock Island since daycare, and it wasn't always easy.

    ''The battles to get him included in school, and then to have the whole student body behind him'', his mom Janis said, with a couple tears streaming from her face. ''It was heartwrenching, it really was.''

    ''I was just euphoric, we didn't expect him to be on homecoming court, but to have him selected as king, was just absolutely amazing,'' his dad George said.

     He credits his son's hard work and his mainstream education. ''Inclusion with normal students, rather than being 'warehoused'' somewhere else with only special needs kids. I'm very, very proud of him, he's worked very hard for what he's achieved''.

    Garlock is a member of the National Honor Society because of his grades, a strong competitor in Special Olympics, a homerun king on his Little League team, and the first to help a classmate or team-mate.

    ''He has a huge heart'', his mom said.

    John says he loves his parents, his 21-year old sister, and has never met a stranger. He wants to work at the Milan Hyvee when he leaves high school.

    His parents are not only proud of John, but of all his fellow students at Rock Island High School who embraced a ''non-stereotypical'' kind of king. They all broke a barrier, together.

    ''These are going to be his future peers, co-workers, and even supervisors, and I don't think they're going to hesitate hiring someone with special needs because of thier experience with John, ''  his mom said.

    Pointing to the photos of himself in the homecoming parade, draped in his king robe, and wearing his crown, John smiles.

    Its good to be king.

 

Red River Valley Down Syndrome Society is a nonprofit support organization serving northeast Texas, southwest Arkansas and southeast Oklahoma.